Tuesday, July 22, 2014

Cathy and Cayucos

I have often thought that in the spring, the rolling, green hills of Cayucos on the central coast of California look a lot like Ireland.  The sweeping landscape creates a beautiful portrait of land, sea, and sky - sometimes crystal blue with billowy white clouds and at other times shrouded in fog.
Whatever the weather, my heart always becomes lighter as I round the bend and come into the little town of dreams come true.
The luck 'o the Irish fills the town and has been a welcomed getaway for me for years.

I first began going to Cayucos in my grief over the death of my brother.
Its rugged, unspoiled, wide sandy beach provided a meditative escape from the ache of sibling-loss.  But more than the place, it has been the people -
my beloved friend, Mugs and her family
 whose hospitality and warmth have provided me shelter from the storms of life.
With the proverbial twinkle, Mugs' Irish eyes ever smiling
her sister, Cathy's effervescent joy
contagious.
Cathy and Cayucos. The stuff dreams are made of.

 But now, the clouds hang heavy over Cayucos as the dream dissolves into impending loss.
 Cancer the thief of joy.
And Mugs, courageously stands at the bedside, ever the nurse, the saint, the sage, tending to her big sister, Cathy, whose diagnosis is grave.

 Irish eyes now filled with sorrow and tears.

An even set, six sisters prepare for the uneven journey of loss and grief.
Too odd to imagine.

From a distance, I think of them.
A close-knit clan of nine
 these six sisters
and their three brothers
 all of whom I've loved from my designated spot as "like one of the family."
 I feel a deep sadness from afar as I think of the happiness and joy that cancer is stealing from their inner-circle around whose perimeter I've danced my entire life.

In solidarity, I weep for my lost sister.

With breaths and days numbered, I can only imagine the desperate love that grips them and the loyalty that has always bonded them.


Cayucos is heaven on earth.
Do I find some solace knowing Cathy has lived in heaven these past few years?  
Yes.
No. 
I am not ready for this farewell.
Too brief a stay.


I think of their angel-mother - whose own death was so peaceful at eighty,
who must now labor to bring her first-born back into her arms.

Perhaps their angel- mother will provide the promise of an eternal Irish wake in heaven -
complete with a sunset over a glistening ocean and a glass filled to the brim with central coast wine.

 Cathy's Irish eyes might once again laugh with her father who suffered his own cancerous end.
Mother, Father, Daughter
as in the beginning,
the first of nine
 a trio once more.

Leaving behind her own husband, children, and grandchildren
with her first granddaughter on the way,
Cathy will return to the baby she lost so many years ago.
It will be his turn for his mother's love.

With the lilt of Irish laughter, you can hear the angels sing...

But right now in Cayucos,
these Irish hearts are broken
as this song of farewell is sung.

May the road rise to meet you, Cathy.
May the wind be always at your back.
And until we meet again,
May God hold you in the palm of His hand.

Sister, thank you.

(Dedicated to my beloved Shea family)















Wednesday, July 16, 2014

This, Too, Shall Pass

"Maybe it's gas," I told myself at 11:30 p.m. Monday night.
I knew better.
First the hint of ache. Then the increased intensity of pain until it hit a "10."
Oh yea, here we go -
into the hot bath to sooth my flank and calm my tensed body.
Up and down. Unable to sit or lay still.
Pounding water - watching the clock.
4:30 a.m. came and went.
ER or not?
This time I decided to tough it out. I had an old bottle of Vicodin on hand so I decided to pop one.
It helped.
So, I am now tethered to my toilet as I drink gallons of water, pee, and wait to pass a
5 mm stone.
I know it's 5 mm because when I awoke from my Vicodin- induced- grog, I made an appointment with my urologist, Dr. Khonsari,  who sent me to get a CT Scan
Stone protocol the radiology referral read.
I know this protocol.
Anything less than 6 mm is passable unless it gets stuck in the urator. Mine is stuck in the left urator.
But I'm still gonna try to pass it.
"You are experienced at this," Dr. Khonsari said to me on the phone today.
Yep, I sure am.
My first stone was at eighteen. It came in December of 1977 after a company party in Laguna Beach.
My most memorable stones were the ones I gave birth to days after both of my children were born  having to leave them in the care of my mother as I went back to the hospital pumping my breast milk while writhing in pain.
The calcium pills I had taken while pregnant produced healthy bones for my babies and a bonus for me.
My most inconvenient stones have come in the midst of production - Carousel in 1995 and most recently, during rehearsal for Les Mis in 2012.
My most surprising stone was in November of 2006 just before Thanksgiving. I was laying on a massage table during my Dahn yoga days as the practitioner shook my legs. Apparently she shook too hard, because I had to get up from the table and excuse myself in kidney stone agony before the session was over.
My biggest was 9 mm and caused me all sorts of grief including a kidney infection. That stone was so stubborn, Dr. Khonsari had trouble pulverising it. Passing the fragments from that monster was like passing a quarry of miniature stones.
There have been other, less remarkable stones I can barely recall.  I know I'm up to at least eighteen -possibly more.
So today, I went to Whole Foods between potty breaks. I bought myself some magnesium powder to drink to help me better absorb calcium, and an herbal supplement called "Stone Free" which hopefully will live up to its name.
This was actually my second trip to Whole Foods this week. Last week, I went to pick up some Vitamin D and Cod Liver Oil for my new low sugar regimen.
Changing one's life takes a lot of work, commitment, time, and research.
It all started with my labs.  Not horrible. Not scary. Just bad enough to be a "wake up call."
Low Vitamin D, High Sugar. Not in the Diabetic range but "at risk."
Notation: Can be reversed with diet and exercise.
And so I plunged in.
Back to the gym. Riding the bike. Gentle yoga.
Walking.
Reading recipes, trying new ones.
Thanks to my niece, Marisa, I have discovered the Paleo diet to control blood sugar.
Farewell to sugar in my coffee. With two cups a day, a spoonful of sugar in each - I was consuming 14 spoons full of sugar each week! Stevia is no replacement and I will always long for my delicious cup of sweet coffee every morning, but I'm adjusting.
Goodbye Rice. Pasta. Beans. (Though I'm reluctant to forego my legumes!)
I've discovered a fabulous cauliflower and cilantro recipe as a replacement for rice and I even dried my own herbs to make various herbal salts. I think I'm a fanatic now.
Well kind of. I am going to have to slowly ween myself off of my weekend wine.
The balancing act of lowering blood sugar by eating the good kind of carbs, fat, and protein and the dietary restrictions to reduce kidney stone production is tricky.
I might have ignored the latter had it not been for this latest episode. Lucky for me, my life style change coincided with my latest kidney stone attack which I am quite certain was brought on by my increased exercise! Go figure.
All that moving around jarred that little sucker loose!
So that is how my summer is shaping up. Or, more to the point,  this is my summer of getting into shape!
My niece says, "Health is everything."
She is right.  I have been the first to point my finger at denial but have not looked closely at my own.
When you ignore your body, it will get your attention one way or the other.
Mine is screaming out pretty loud for me to take care of it.
So they say confession is good for the soul.
Today, I confess to starting a new way of life.
And I've carved it
 in stones.









Monday, July 14, 2014

608

They tell me 608 is gone.
Razed.
The threshold through which my father took his final steps and the building that housed his dreams are no longer.
Place and memory.
Long before that fateful August morning when my father set out on his final jog, he dreamed of breakfast meetings complete with omelets. He designed his office with a kitchenette for cooking and a bathroom for showering.
608 East Broadway was not just a building.
It was a family business.
The news of its demolition caused me to pause.
Halted, like the once thriving enterprise that had inhabited its house-like structure, I momentarily mourned its end.
I grew up with 608 and had long ago let it go - its death to me pre-deceased its ultimate demise.
And yet like a monument to a past as faded as the yellow pages of my youth,
it stood  in the ghost town that was once my home.
Anaheim.
This spot will now be paved for parking.
No one will mark it as having had any historic significance.
One building-
One threshold-
One father-
For me,
608 East Broadway will always be sacred ground.








Tuesday, June 10, 2014

His Normal Heart

Today is the twentieth anniversary of my brother's death. In a twist of irony, I spent last night watching the HBO movie version of Larry Kraemer's play, THE NORMAL HEART.  I was destroyed by the end of it. The spotted  men. Walking skeletons. The anguish. The indifference. The courage. The injustice. At least by the time Bob was diagnosed in 1994, there were medications, funding, support services, and scientific data. For those first stricken with the "plague," there was nothing but the loyalty of friends and the compassionate, increasingly angry voices of activists who worked tirelessly to bring attention to the epidemic. Twenty years later, my story fits into the larger epic of the AIDS story, like a piece of the quilt.  So much has changed in those twenty years. Now people live with HIV thanks to the "cocktails" and medical advancements. Magic was diagnosed before Bob. He has lived a full life. There is a reason that my brother is dead and Magic is not. The social stigma that accompanied the diagnoses, captured in The NORMAL HEART had to have played a part in Bob's fear and unwillingness to seek treatment earlier. I believe now, twenty years later, that my brother thought he had too much to lose. It was unimaginable for a man who, while not closeted, lived a very private life. We never spoke of  "it."  It wasn't until I walked him in to the hospital to get the test that we ever even acknowledged anything about "it." In fact, we never did say anything to each other about "it."  The only words I said was "Well at least we'll know."  Whether shame or embarrassment were part of his silence, I'll never know.  I only know that for me it was the most intimate conversation I'd ever had with my brother. The details of my story are written in ARIA a sister's journey with AIDS, and can be found in this blog. I have been writing this story now for twenty years. Last night, the realization I had, thanks to THE NORMAL HEART, was that my brother was scared.
But unlike so many of those poor guys in the early 80's who faced healthcare workers in space suits, and whose bodies were tossed like rubbish into trash bags, my brother died surrounded by his loving family who held his hands, gloveless, and kissed his face and mopped the perspiration from his forehead and sang to him as he labored to leave us.  There were few words spoken between us about "it."  I believe that made it easier for him. But the unspoken moments pour out of me still. I miss my brother and his normal heart.

Monday, December 16, 2013

Resilience - Twenty Tips

1. Grieve your losses. Otherwise they will haunt you.
2. Stay close to friends, family, and community. Don't isolate yourself.
3. Go to bed for a while. Then get up,
4. Go to the ocean. Sit a while at its edge. It has something to say to you. Listen.
5. Find a creative outlet. Write. Paint. Journal. Draw. Make a collage. Garden.
    It will transform the pain into something beautiful.
6. Seek support when you need it.  There is no shame in asking for help.
7. Cuddle with something little and cute. A puppy. A kitty.  A baby.
8. Get a massage.
9. Read Rilke.
10. Work at something you love.
11. Be open to the gift.
12. Walk.
13. Until you have the energy, only surround yourself with people who understand.
14. Light candles. Soak in the tub with lavender  or  rosemary salts.
15. Cry when you need to.  Eventually you will stop.
16. Become comfortable with solitude.
17. Be in the moment.
18. Sunflowers are happy. Get some.
19. Don't judge yourself. Treat yourself like you would treat your best friend.
20. Give Thanks.

Sunday, November 24, 2013

You Can't Go Home Again

I look at the devastation in the Philippines- the anguish on the faces of mothers, fathers, husbands, wives, children as they sift through the rubble, barefoot,  in contaminated water, searching to salvage...anything.  The typhoon's horrific violence, unleashed on these tiny island villages leaving a smiling people, bereft and homeless.

I see the tornado that swept through Illinois. Random selection. Implosion. Obliteration. Unrecognizable terrain.  Any sense of direction, lost in the ruin.

I think of  the Syrians in exile. Families relocated to refugee camps across boarders.  Makeshift shelters. Escaping man's inhumanity to man. Even their own beds not safe as they breathed lethal chemicals while they slept.

History's human story is filled with chapters of people struggling to survive,  seeking new beginnings, risking everything to escape oppression, famine,  starvation, annihilation.  Ellis Island. "Next year in Jerusalem." The Mayflower. Immigrants. Refugees. Boat People. Tribes.

Each story filled with one common theme - hope that they will find home.

I have, over the course of nearly a year and a half, been thinking a lot about home. I have been home sick.  And I've been sick of home.  While my plight pales in comparison to the catastrophic experiences of families whose very lives are at risk merely from having been born in a war-torn region of the world, the question of what home means has been forced upon me by circumstances entirely out of my control.

As I look back on my life, I am aware that home was a place of deep rootedness. Long before I was
born, my father was a traveling salesman.  He and my mother, lived in apartment hotels throughout the southeast while my father sold for RL Polk and Company City Directories. Eventually, they bought a trailer and towed it from town to town, like tortoises with their shell, home came with them wherever they went. It wasn't until they arrived in Anaheim, California, in 1949, that they finally bought their first home, famously, on Flower Street where they lived next door to the family who would become their best friends.  The migration began. My father and his brother opened their own business. The promise of opportunity beckoned to other family members. Letters and urging from my father to travel west lured my aunts, uncles, grandmother, cousins. They all relocated to Southern California. On Flower Street alone, my Aunt Betty and Uncle Larry lived at one end of the block, and my mother's mother, Mema, lived next door to my parents. My father's sisters and brothers all moved from Ohio and Kentucky, to the post war suburbs, holding on to the hope and dream of a more promising future.

While I came into the story ten years later, in 1959, the successful rise of my father from his poor Kentucky roots to business owner, home owner, and independent publisher, is everything that the American dream promised. No myth at work here. With no privileges of class or education, equipped only with an ethic of  hard work and know-how, and blessed with a dashingly handsome face and charismatic personality, my father was a self-made man with a high school education and determined
spirit. The luck of timing in a post World War II economy, provided fertile soil to put down the roots from which my childhood would grow. A childhood of privilege. Not great wealth or connection but an easy life in a suburban neighborhood. A house that to my parents must have seemed a palace as they earned their way to the life-style of pool parties and sipping scotch around the bar in a den added on for entertainment.  My father's dream of success matched with my mother's frugality and common sense, provided me with a security that was certain. Clothes. Toys. Trips. Most importantly, education.  My father took his greatest pride in providing my brother and myself with the best private school education available. My brother attended St. Catherine's Military Academy, then, no doubt, a sign of prosperity. We both attended St. Boniface Catholic School, parochial high schools and ultimately, the greatest achievement of my father's life, he sent us both to the University of Southern California.

The trajectory of my life was tied to the coat tails of my father's success and his beaming optimism and belief
that if you didn't "make it by thirty" there was something wrong. With no perspective of my own and only my father's example from which to imagine my future, my expectations were cemented into what certainly became the myth of my generation: that children would always do better than their parents.  What happened to the publishing industry is something my father could not have foreseen. Ink dried up and paper went up in flames, along with the independent publisher, the local bookstore, and the dial phone. While the new generation of digital media, spurred by the rapid growth of the internet, created new opportunities, those of us caught in between have been forced to adapt and seek very different paths than those carved by our parents.Making it by thirty became the impossible dream. Thirty came and went with the ups and downs of a business landscape that brought boom and bust.

 The complete reset of our economy brought on by greedy banks, bloated egos and Wall Street hubris brought an end to any notion that my future would be as bright as the one my father experienced for himself or imagined for me. My story is littered with worthless stock, meaningless stock options, empty promises of liquidity events, and the ravages of public offerings and unmet bottom lines.  Mergers and Mayhem as far as the eye can see from Chicago to LA. From family business, to corporate giants, bankruptcies that make Miller's character Biff in Death of a Salesman, seem more like a prophet than a lost soul. I understand the earthquake of when they "stop smiling back."  The ash heap has piled up and so, unfortunately, has my bitterness. Willy Loman's got nothin' on me.

The Great Recession may not rival the dramatic images of breadlines and dust-bowl migration, but the loss of dreams, homes, and financial security have altered people's lives and dashed the hopes of the promise of a comfortable retirement. Savings accounts tapped to put food on the table. IRA's cashed in to pay the mortgage. Short sales. Foreclosures. Rooms for rent. The  divide between the haves and have not's has less to do with  level of education and more to do with luck and the winds of fortune shifting.

The depth of my disillusion may be irreversible. I have been lied to. Not intentionally.  The lie of our times is woven into the fabric of my being and into the collective psyche of American society. That lie promised that reward is inevitable after sacrifice. I have perpetuated that lie with our children by sending them to prestigious universities and going into debt to give them an education that will hopefully launch them into a bright future. And indeed perhaps this one sacrifice will pay off.  As luck would have it, they are still young enough to be on the cutting edge of the new technology and may pick up where my father left off with a new generation of entrepreneurial spirit.

 Not so for me. Instead, I am forced into exile. To rent my home, a home that represents my lost dream. Much like my parent's vision of pool parties and fun - I dreamed of a life at the beach. Sailing and kayaking. Yearning to be a member of "the club", like Sabrina crooning her neck from a tree over the wall of the Larabie mansion on Long Island. Fueled by an imagined fantasy life that seemed possible at one time, now has, as Blanche says in " A Streetcar Named Desire," "slipped through my fingers."

Home has been torn from me. And I have clung. Stubbornly. Voraciously like a lioness roaring down a predator, I have fought to hold on to what I believed I deserved.  How wrong I have been.

And what of the family in the Philippines clinging to a tree for survival as everything they own is swept away in the typhoon's gale?
There is no comparison to our situations.
 My shame and guilt for my longing to live in my dream house tempers my grief and gives me perspective.

 But it is grief none the less. I pack up the rooms of my home just as I've packed up my family business, forty-nine years of telephone directories, my father's legacy, and my brother's life. I am no stranger to boxes.

 The family who will be renting our home for two years plans for the birth of their baby and what color to re-paint my daughter's room. The Paris decor will come down, holes will be plugged, and our memories and dreams will be boxed up.  My would-be studio, decorated in Mary Engelbreit yellow, will be transformed into his office. The yellow has to go. Of course it does.  Bold in its choice, its merriment now seems naive and stupid. I am embarrassed by it because the history of upside down cherries is a story from our home on  Pine Street that he can't possibly know and so the room seems ridiculous.

 I've fought not to have to do this for a year and a half. But now there is no choice. When you reach the end of the rope, it's the end of the rope. At least we can rent and aren't forced to sell. And who knows, just like the "L Box" in London, there may indeed be a happy ending to this story.
And so I hold on to that hope.
The hope that we will go home again.  But I cannot cling to that hope. Expectations have been dashed too many times for me to be that foolish.
For now will mourn the death of this dream and heal this wound of uprootedness.
I will bow my head in shame for my yearning for a materialistic lifestyle of boating and beach and seek higher ground in the heights in the spiritual lessons of this exile. I will process my guilt, and reflect on the sins of my father, seeking to forgive him for planting in me the seeds of a dream that my life would be better than his. An innocent enough dream -  reality is what I've had to face over and over again. He died too early to give me the necessary tools to deal with adversity.  I've had to learn that all by myself.

I know it is all in how you look at it. I've always been a home body. I lived two blocks from my mother for twenty years of my marriage. Eight houses away from my extended family for my entire childhood. Maybe it was my Mother's need to stop rolling along in a trailer that got imprinted on my psyche.  She stayed put for over fifty years on Resh Place.  My idea of home is roots.  I have idealized the notion of the family home, filled with memories, laughter, tears, and moments.  It is not easy for me to let go of that and turn my home over to another family to fill that space with theirs, while erasing mine.The hole in my heart is gaping.

Dorothy in the Wizard of Oz says over and over "There's no place like home.
We all say, "Home is where the heart is."

My problem is, I left my heart on Savona Walk. 
I hope Thomas Wolf was wrong when he said, "You can't go home again."
But if he is, I will have to redefine what home means to me.
I will have to find a new dream.

Will the phoenix rise...again?
There's always hope.


Wednesday, November 13, 2013

When I Die I Want God There



I remember the day I drove to the crematorium.
I knew I had to be there with my mother even though I knew she was already gone.
Have I told this story?
Have I written it?
Maybe.
Yes.
But I'm remembering it now.
So I'm re-telling it.

I'd awakened  that morning knowing it was the day.
I'd arranged with the mortuary to be there, though they'd advised against it.
I was having a hard time letting go of that body.
That body had given me life. Had held me and hugged me and tickled my arm and patted me.
And for the past few years, I'd cared for it in ways I'd never imagined. Mother and I had traded places.
On that morning, I was having a hard time with the idea of that body being incinerated.

So I looked for a sign.
The first was a camellia in full bloom in our yard.
Pink.
Mother's favorite.
I carefully snipped it and wrapped it in a wet paper towel and foil to take with me.

As I drove down the winding road to the crematorium
there were two birds - with a wide wing spread - soaring ahead of me.
They were the only two birds in the sky that I could see.
They flew ahead of me the whole way to the crematorium - as if leading me.
Soaring, dancing in the sky.

And I thought
There they are - Mom and Dad.
Dancing again at last.

I knew that they were together. That they had sent a sign to me
that they were dancing in the heavens and that it was alright.

When I arrived at the crematorium,
They pulled the casket out and asked if I wanted to see Mother one last time.
I said I did.

I placed the camellia on her chest. Kissed her cheek for the last time -
and gave the okay to roll her body into the oven.

Whether those birds were a sign
or whether they were just two birds swooping in the wind
whether a camellia in bloom was a sign
or whether it was just the start of spring
whether there is a heaven
and eternity
or whether there isn't
doesn't matter.

This is what I know.

Believing it
is comforting.
Believing in something eternal
makes the living more meaningful.
It is all a mystery.

I just know that when it's my time,
I want God there.
Because believing it
makes it so.